Center for Rare Diseases – Reference Center Northern Bavaria (ZESE)
Programs and services
- Support for patients with known rare diseases searching for specialized clinics within and outside the university hospitals in Würzburg
- Outpatient clinic for patients with unclear diagnoses
- Interdisciplinary case conferences for guidance on further diagnostic or therapeutic steps
- Mediation of contact to patient organizations
- Educational meetings for patients and health care professionals
Cooperating institutions
- All associated disease specific centers for rare diseases
- All departments of the University Hospitals in Würzburg
- Institute for Human Genetics
- Institute for Clinical Epidemiology and Biometry
- Interdisciplinary Biomaterial and Data Base Würzburg
- Department of Orthopaedics König-Ludwig-Haus
- Member of the German Working Group of Centers for Rare Diseases